Shake, Wobble and Roll

I am writing this at 6:44 pm on a Wednesday. I think it is august 12th. I started out correcting my typo's , but what the hell let her fly.
I have been takigmusic playing on in the back ground helps to coordinate the wobbless.
Makes it look (to me at least0that I am boppong to the music.
Not..
As well thisI am typing as it comes fro my brain .
right about now I would gather all my inner strenthg my meds every 3 hours. when I srARTED THE WOBBLES WERE VERY slight and only for a little while.
Well let me tell you that is not the caes. Today,. right now i ma in full wobble. Having the

Dyskinesias are involuntary, erratic, writhing movements of the face, arms, legs or trunk. They are often fluid and dance-like, but they may also cause rapid jerking or slow and extended muscle spasms. They are not a symptom of Parkinson's itself. Rather, they are a complication from some Parkinson's medications.

Okay enough of that crap.
What you just read was an experiment. What would it be like to just let go. To forget about trying  to seem normal.
Letting my freak flag fly so to speak.
This is my first experience with  dyskinesia. Oh yeah I've had the wobbles from time to time. Sometimes when we were out at a wedding, or a dance, and the music was loud I would find my head bobbing to the music. On the dance floor I just looked like the other old white guys dancing. Only a little more whiter. In the car again I would find myself moving to the music.

When I was first diagnosed I told myself there was no way I was going to be like Michael J Fox .

I don't know which is more tiring, keeping a handle on the wobbles or working through the "off funk".

Off Funk you say? What's that ??
Unfortunately there are no words in the English language that do justice to the Off Funk. But I will try.  Imagine you are standing in front of 5 doors. Behind one of the doors is your heart's desire. Behind another is your worst nightmare. The rest have nothing. You have only one choice.
Oh, and you only have a minute to choose. And there is a large man with a large knife  behind you.
NOW PICK he screams! And that instant of panic. that's it.
Now expand this to every little choice. What to have for supper, to go for a walk, go to bed, which turn to take.
And with that many choices at once the brain shuts down. And you just stare at the doors.
This happens sometimes three or four times a day.
If I get a day with only one time it's a good day.
Back to the wobbles

I am at the stage that if I concentrate I can contain the wobbles. Oh if you look at me you can tell I am wobbling. I think I am hiding it, but most people are too polite to call me out on it.
Be right back.

Okay I'm back. Had to get Nick from work.
Where was I?
Oh yeah the wobbles.
I wish I could take credit for the "wobbles", but that goes to the bravest, most upbeat,-despite having everything bad thrown at her, person I know.   Pam.
And I think wobbles works a lot better than dyskinesia.
As the definition says, the wobbles are not a symptom of Parkinson's, they are the price you pay for trying to get back to normal.
Basically.
You take the Levodopa to add the dopamine that your body no longer produces back into your brain .
By taking the Levodopa one can move, talk, play piano, play golf.  Everything you tend to take for granted.
But, there is always a but.
The way it was explained to me (to be said in an east Indian accent) as the disease progresses over time, in order to keep moving, you have to take more Levodopa. And with long term usage eventually your body cannot absorb all the dopamine and some of that excess dopamine goes to parts of the brain it should not. (Stop accent)
For me, this happens later in the day. Lately around 6 pm to 7 pm. Tonight is worse. I am still wobbling and it is 8:30.

Eventually the wobbles will be all the time. I have learned to accept this now. Seven years ago not so much.  I suppose I could try to cut back on my Levodopa, but it feels so good. That feeling of not feeling the Parkinson's. To feel like you are normal.  To be able to just sit down anytime at the piano and butcher Layla. And not have to wait for that perfect moment when your fingers will move.

It's now 9 pm. My last dose at 6 pm is wearing off.
The wobbles have pretty much gone away.
I am exhausted.
I know what you're thinking ... no way it took him 30 minutes to type one paragraph .
Some days yeah it does.

Hey Micheal "whats shaking "