Catch up

Well

I just looked, and it has been a while.

My last post was March 15.

I was talking about the amount of drugs I take in the run of the day. I was still on the Movapo drug trial.

The amount of PD related drugs were working, but I still was not making it to the next dose 4 hours away. In an ideal PD world the medication you take at say 2 pm will last until 6 pm, with you just starting to feel the tingles of the 2 pm dose wearing off at 5:45.

I wasn't making it in the above example. Take the drugs at 2 pm, the drugs were completely gone, out of my system, by 4:30.

As a result, life was a series of wake up,  take the drugs, feel okay for 2 hours, be off for 2 hours,

repeat.  Go to bed at ten pm.

Oh I lived during these times, but not very well.

It was hoped the Movapo would provide relief during the off times. But the results, while encouraging at the start, proved to have too many complications.

1. It brought on Dyskinesia, which is no fun in anyone's life.  Although, a little head bopping in the car is okay, and it gives you some funky white guy dance moves on the floor.

2. It was making me feel weird. Can't describe it, it was just weird. So we stopped that.

So what do you do?

After consulting with my doctor. I thought I should go half dosage every 2 hours.

His suggestion. Keep the dosage the same, add one more time.

So now instead of 6 am, 10 am, 2 pm, 6 pm...I take the same amount 6 am, 9 am, 12 noon, 3 pm, 6 pm.

I have been on this regime for the last 2 months.

I must say combined with a lot of physical activity, namely golf, and a lot of work on the house,

most days I feel pretty good.  I can almost remember what normal feels like.

So there you have it.

For the few Parkies that will read this, I hope your take away.is...(Isn't that the stupidest thing?  Your take away... it's not left overs.) don't be afraid to try things. New things.

I tried the Movapo, wasn't for me.

I am now trying the new drug "timing", big yes to that.

If something is not working for you, try it a little differently.

Remember sometimes the doctor is guessing too.

And for the few normal's who read this, enjoy life, it is way too short to worry about things you can not change. Concentrate on those around you. Make your life a little bit better.

Stay Safe

Stay vigilant

Wear a mask

Wash your hands

And remember "IT'S ONLY INCONVENIENT"