Thursday, 26 April 2018

A Simple Thank you




Parkinson's
It is a mean ,nasty little bitch,
It never fails to remind you  everyday , " I'm here "
For some, it is the effort of getting out of bed. For others it's knowing that at some point during the day, you will be unable to do something. What ever it is.
Like I have said , "I am very lucky". My symptoms, are at this point very manageable.
Even with onset of Dyskinesia, and Dystonia . I can still , Golf , Ride a bike, Bowl , dance . Do anything I put my mind to. Even learn to play piano .

I have two hero's in my life.
One is my dad , To still be living life with such energy. To be looking to learn knew things, and still be curious.  Love you dad.

The other is  Cheryl.

I think the real victims of this fucking disease are the spouses, the family members. They didn't sign up for this. But here they are.
Think about it . You go through life , thinking you are with the one you love. You have an idea of what your future will be.
AND BAM.  February 13, 2013, 4pm

As a Parkie, all my concentration is on making sure I can get through the day.
It is not just living day to day, but med to med.
On the job I am focused on the next meeting, the next sale.
At home I get to sit and watch a new part of my body move itself.
Kind a fun game , guessing which part will move next.
Everything else will be handled by someone else.
Figuring out which song to use the morning

Spouses of Parkie's .
Get to watch out of the corner of their eye our little game .
It's not fun for them , they see the future .
Sitting there watching your loved one slowly morph into something different , someone different.
Getting up in the morning never knowing which Parkie will show up.
Is it the "Man Cold Parkie"  (for the lack of a better term)
Is it the "Angry Parkie "
Is it the "Horny Parkie"
Is it the " Sad Parkie"
And not just the morning ,these guys can show up at any point during the day.
Making sure I take my med' s on time. Organizing the doctor's appointments, etc.

I can understand how this can lead to resentment . bitterness. You did not sign up for this.
The worse part is there is no end to it. It goes on and on.
Again I am so so very lucky .

Cheryl I Love you!!!
Thank you 

But I also admire all  of the "Parkie Spouses". Both male or female. 
Even though we (Parkie's) don't say it near enough
WE THANK YOU
WE LOVE YOU

And remember IT'S ONLY INCONVENIENT  

ps: I apologize for the bad grammar, punctuation, etc
      I gave my editor the day off.  
 





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