WOW
Here we are.
Five years late, but here we are.
I
told myself when this all started the I would do a blog. My reason was I
was going to share my experience, and by doing so help someone. Any
one, just help someone.
Now I find the person I am helping is myself.
Okay as this is the first of hopefully many posts. First the beginning, then on the good stuff .
But first I must warn you . I write the same way I talk . I tend to leave words out and change my train of thought quickly.
Every Parkie remembers the date, the time you when you are sitting in a exam room.
February 13, 2013 3:30 pm
Me,
the doctor and the nurse . My wife did not come with me. We thought,
where it was the first consult. I would be sent for tests, and in 3 to 6
months we would find out what caused the tremor in my right hand. So we
decided she did not need to come. WHO KNEW. Twenty minutes and bang
life changed,
So there it was Parkinson's
For any
one out there just getting the news, I implore you, find someone,
anyone with Parkinson's and talk to them. Look for a Support group in
your area. Don't think you can find all there is to know on the
internet. You can't.
You need to ask questions, you need to hear the experience.
Our response
Lets
go the Casino for the weekend, get away from our family. So they won't
see the red eyes. So we would not have to tell them. We told ourselves ,
we wanted to get some answers first.
I just wanted to hide.
I was going to be Michael J Fox in a week
I did not have that contact at first. Eventually I was put in touch with a small group of fellow Parkies.
That was everything. I am forever grateful to the now friend who guide me to them
Parkinson's
is like the yellow car thing . Buy a yellow car and suddenly there are
bloody yellow cars everywhere. Tell someone you have Parkinson's, and
they suddenly have a relative who has had Parkinson. And everyone has a
opinion, or a cure. One guy told me his neighbor had Parkinson's and he
stopped the tremors by going on the Paleo diet.
I was told countless times about aunts and uncles who have died with Parkinson's.
"You don't die of Parkinson's , You die with Parkinson's"
I
did do research . I found out that exercise can slow the progression of
the disease . So I joined a gym. Fifty-four standing in the middle of a
large room full of machines from the Spanish Inquisition.
"No one
expects the Spanish Inquisition" Expecting a guy in a long red robe
with a hunchback at his side to appear any minute."you have the quaking
sign, you must be purged" But this nice 10 year old ( well she looked
ten) saved me.
It was also a relief. I now had a reason
my dick stopped working.(Yes I will talk candidly about sex , it is an
important part of life. Just simply ignoring it or addressing it in
vague language is not my style) I had gone to the doctor 6 months
prior, and got the "happy pill". My wife was somewhat relieved ,as she
thought she was the reason for the problem.
I now knew why I went from a good bowler to a terrible bowler.
So if you are just getting the news and your search leads you here.
My advice:
Breath everything will be sort of fine.
This is a long distance marathon, not a sprint.
YOU will not be Michael J Fox in a week
Be honest with yourself and your partner .
Start to excise if you don't, work harder if you do
AND MOST OF ALL REMEMBER
IT'S ONLY INCONVENIENT
